Aug 26, 2024
Diving into equity and inclusivity for kids with sickle cell disease
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As part of its ongoing efforts to promote health equity and inclusivity among patients with sickle cell disease (SCD), The Cigna Group launched its Safe Swimming with Sickle Cell pilot program at Camp Crescent Moon in Metro Atlanta in July. Specifically designed for children with SCD, the program offered swimming instruction to 80 young campers living with the condition. The initiative was led by Ivy Bryant, a senior director of client relationship management for The Cigna Group’s Evernorth Health Services, drawing inspiration from her 13-year-old daughter, Peyton, who also has SCD. 

The program, developed by Bryant, along with Cigna Healthcare clinicians, provided swim lessons and education to address a variety of SCD challenges. These included the prevention of condition-induced pain and fatigue resulting from the condition, promotion of swimming as a feasible physical activity to improve overall health (taking the necessary precautions) and enhancement of mental and emotional health by promoting inclusivity, acceptance and encouragement.  

Collaborating with Children’s Healthcare of Atlanta and the YMCA of Metro Atlanta, The Cigna Group orchestrated a week of  swim instruction, which centered on providing SCD-focused swim lessons given to the campers by the Y instructors. A key component of the Safe Swimming with Sickle Cell program was the education of children with SCD about the importance of proper preparation when swimming with the disease. This was done through a custom-tailored swim guide that was developed for both children and caregivers and endorsed by Cigna Healthcare clinicians. 

Sickle cell disease predominantly impacts non-Hispanic African American/Black individuals, who account for more than 90% of those affected. The Safe Swimming with Sickle Cell program aimed to provide emotional support to campers and reduce the social stigma associated with this chronic, rare disease by fostering a safe, welcoming environment. By offering instruction on special precautions to take for swimming, the program enabled the campers to partake in, and enjoy, an activity often unavailable to them due to their condition. 

“Most of all,” Bryant said, “the program gives these kids – including my daughter – a greater sense of belonging and connectedness, so they can see it’s possible to just be a kid and thrive beyond their disease.” 

Eric Martinez, vice president of marketing at The Cigna Group, expressed enthusiasm for the program. “I’m excited about how this work strategically aligns with The Cigna Group’s ‘each&every’ health equity campaign by underscoring the importance of health equity and inclusivity, as well as by highlighting Accredo’s Junior Care Force educational experience to help caregivers and kids with chronic and complex conditions like SCD understand their disease… on their terms,” he said. 

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